Improving Services for the Medically Complex Child: A Family-Centered Approach
Roughly 3 million children have medically complex conditions representing about a third of annual healthcare costs, posing enormous challenges for the healthcare community, families and the most vulnerable patients they care for. Increasingly hospitals are realizing that if they are to improve care and reduce costs they must put families at the center of the equation. Programs like the Children’s Hospital Association’s Coordinating All Resources Effectively (or CARE) initiative through the Centers for Medicare & Medicaid Services have helped identify best practices for these children including creating customized family-centric plans for each patient; ensuring that care is coordinated between all caregivers and the families so that patients get the treatment they need when they need it, including at home. Panelists will offer their hands-on experience in implementing these practices and discuss needed structural changes like looking at different payment models that reward coordination and quality care and potential community, government and payer partnerships.